CFIDS, FMS, MCS, GWS, Lyme Info Page

İMarilyn J. Kerr RN 1997-2002

US FlagOriginal Fibromyalgia Ribbon TEXT CFS Ribbon


I wish to personally welcome you to this web site. It has been created, with love, for you.

When we first get diagnosed (or wonder if we should be diagnosed), I know too well how difficult it is to find information about Chronic Fatigue Syndrome (aka CFIDS, M.E.), Lyme, and/or Fibromyalgia Syndrome.

There are a myriad of sites that bring you the basics, and I try to present you those basics as well as information slightly beyond.

At the moment, there is no cause nor cure. There are no magic bullets. This disease is so complex, no one drug will work. This is not a disease of just your muscles, your immune system, your sleep dysfunction, your hormones, your nutritional deficiencies, your NMH, or your gut; it is a cluster of symptoms that involve every system of your body. Treating it, therefore, involves testing and treating those deficiencies.

The controversies surrounding that and the differences in our health contribute to our stress. My new job is to help us sort that all out.

Hugs, Marilyn K

Fibromyalgia is a chronic disorder of approximately 10 million Americans and is characterized by widespread musculoskeletal pain, fatigue, and multiple tender points. CFS is characterized by debilitating fatigue (experienced as exhaustion and extremely poor stamina), general pain, mental fogginess, gastro-intestinal problems, neurological problems, and a variety of flu-like symptoms. Lyme Disease symptoms overlap dramatically with those of CFS, FM, and Gulf War Syndrome. A growing number of doctors and patients believe these are all the same disease.

A N N O U N C E M E N T

Due to the Lyme Disease epidemic and the phenomenal overlap of symptoms (see Index below for references and information), I have added Lyme Disease information to this website.

The reason for this is because since May '99, approximately 80% of local CFS/FM patients tested by three different labs have turned up positive for Lyme Disease. This is being replicated throughout the world.

Based on this and the research I've seen, I believe we cannot ignore the possibility that Lyme Disease is exceedingly significant as a possible cause and/or perpetuating factor in CFS/FMS/GWS.

Please join me in exploring this possibility via the links below and consider getting appropriate testing done for yourself and family members.

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Information Available Last Modification
Advocating for Real Change 7/2801
"A Shot in the Dark" The famous 1996 New York Magazine article about tainted Polio Vaccines 7/10/01
"Bacteria Revolution" - Transcript of  '99 CBC LDF conference concerning Lyme et al 8/25/01
Order Your Favorite Books 7/22/01
Biochemical Abnormalities in CFS/FMS 7/12/01
Brainfog and its Significance 7/12/01
Differential Diagnosis in Lyme Disease 12/15/99
Should You Change Your Doctor? Take a Short Informative Survey 1/12/01
Table of Contents to a Wealth of Co-Enzyme Q10 Information 8/26/01
Cytokines & CFIDS/CFS/ME Can the Connection be Made? 4/4/98
Diagnosis and Integrative Treatment of Intracellular Bacterial Infections in CF and FM Syndromes, GWI, RA and other Chronic Illnesses 10/17/01
Signs of Depression and What You Can Do About It 7/10/01
Drs. Bell & Streeten Hypovolemia Research 2/6/01
Dr. William Reeves Blows the Whistle on the misuse of CDC CFS Research funds 4/1/99
Dr. IJ Russell: Biochemical Abnormalities 5/13/98
Dr. Ryll's Patient Handout 2/8/98
Dr. Samuels Speaks About CFS/FMS 9/23/97
Dr. Jay Seastrunk talks about Neurontin and the Brain 12/7/97
Dr. Teitelbaum Placebo-control Study on the Treatment of CFIDS/FMS 3/30/99
Dr. Vojdani's RNaseL Research 12/5/98
Drugs Which Disturb Stage 4 Sleep with DrugChecker 7/12/01
1997 Medical Studies 7/10/01
1998 Medical Studies 7/10/01
Factors that will cause FMS to progressively worsen (unless treated) 7/22/01
FMS Survey Results 4/9/00
Frequently Asked Questions about FMS/CFS 8/16/01
GAO Report proving that the CDC did Misuse CFS Research Funds 5/10/99
GWS not one, but three diagnoses: CFS, FMS, & MCS 1/26/98
ICD codes for CFS, ME, and FM and their Significance 7/12/01
Leaky Gut Syndrome and Yeast Overgrowth 9/3/01

Kindling, Focal Brain Injury, Chemical and Electrical Sensitivity in the Production of “Environmental Disease”

9/29/01

Recent Leaky Gut Syndrome Research 8/25/01
"Invasion of the Body Snatchers" 8/19/01
Links for FM, CFS, Mycoplasma, Stealth Virus, and Lyme Disease 9/13/01
Lyme CFS & FM Research 8/15/01
Basic Lyme Information 10/14/01
On the Misdiagnosis of Somatization Disorder in Gulf War Veterans and the Relevance of Related Terms 1/26/98
My Remission and How I did it 8/31/02
Neurontin Abstracts of '97 & '98 7/10/01
Neurontin '99 Abstracts 7/10/01
Neurontin 2000 Abstracts 7/10/01
Neurontin 2001 Abstracts 8/15/01
Neurontin FAQ Page 9/14/01
Neuropsychiatric Assessment of Lyme Disease: Comparisons of CFS, FMS, Lyme, etc. 12/15/99
NYC FM Conference 1998 7/14/98
"Fibromyalgia: Holistic Approach Breeds Optimism" 8/19/01
Overlapping Disorders: CFS, FMS, MCS, & GWS 1/26/98
Pain and Assessments - understanding your doctor's Pain Scale 8/3/01
Serotonin Syndrome 5/8/98
What is Serotonin and its Significance? 2/6/01
Somatization Disorder, Organophosphate Poisoning or Overlapping Syndromes of CFS, FMS and MCS? 6/26/98
CFS is a "medically determinable impairment" The Social Security Ruling 8/24/99
Short List of SSDI Impairments 2/6/01
Policy Interpretation by SSA of CDC CFS Definition 7/23/01
Suncoast CFS/FMS/MCS/GWS/Lyme Support Network (West central Florida) 4/9/02
Treatment Stories 9/6/01
Web Rings And Awards 7/7/01
What I Want for Christmas 7/22/01
12 Step Recovery Page 9/3/01

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